This page may contain affiliate links.  We only recommend products and services that have tried, trust and love.  For more information, you can read our terms and conditions.

Why I share my story

Within the last few months we have lost Chadwick Boseman and Kelly Preston both to Cancer. Without the public knowing they were battling the disease under the very end. I’m sure there have been others.
 
Cancer isn’t a subject that people like to talk about and so many go through their treatment in private, wanting to keep it to themselves.
A journey with cancer is a personal one. I know many who do not share their experience. They do not want pity, they do not want to be treated differently, they don’t want to visually witness their friends backing off from spending time with them. And many other reasons besides.
 
I am sure that being in the public eye would only enhance all those feelings.

I followed avidly Shannon Doherty’s story of her battle on Facebook. Supporting her with every post, praying for her with every photo. The joy of her laughter and the pain of her tears. Her sharing gave me hope and strength and, if I am honest, completely changed the opinion I had of her from 90210 days.

I also remember following Kylie’s battle not long after my first diagnosis in 2004. Reading about her treatments, what she did or didn’t do. Wondering why she looked so gorgeous wearing a headscarf whereas I looked like a Russian grandmother. She chose not to have steroids with her chemo and I remember wondering why. Had I realised the “slight weight gain” they promised was such an understatement I may have made the same choice!

But how do you know these things? Yes your doctor, oncologist, surgeon can answer lots of questions but their viewpoint will never be the same as yours. There’s no way my oncologist would have told me that although the steroids may make me feel a tad better, I will also put on 2 stone and my face will look rounder than the moon. The full moon.

Yes I was offered the cold cap to try and save my hair, but it wasn’t until speaking to another warrior that I realised too late it was never going to work on my thick long hair. Again, if I as known, I would have had it cut short but into a style I could live with, and one that would allow the cap to actually work!

Sometimes you just need to know that someone else knows how you feel. Knows the battle you are going through. Has some tips about things to do, things not to do. Or can just listen. Understanding exactly what you’re taking about.
 
I am in no way belittling the awesome support from Macmillan and other cancer services. Nurse Jill got me through some very rough times. But it’s not quite the same.
It is overwhelmingly heartbreaking when someone with a similar diagnosis doesn’t come through the other end. It is frightening and makes you question your own mortality.
 
But then there are the success stories, the ones that give you hope, that keep you fighting. The ones that make you think if they can do it so can I!
 
Without people being open about their diagnosis and their treatment, we wouldn’t have those stories of hope and encouragement. It doesn’t really have to be anyone famous. Anyone will do. Just knowing that someone else had the same as you and lived is enough to stop you choosing your favourite funeral record.
What about the best way to clear chemo brain, the best soother for radiotherapy burns, what works for nausea, constipation?
 
The best pencil to put your eyebrows back on, false eyelashes, wigs. So much more.
 
When I was first diagnosed in 2004 there weren’t blogs. There were magazine articles and forums. Forums can be a great source of information from other patients, but personally I found they scared me more than helped. People rarely post positive news on forums which is understandable, but I ended up having to leave as it made me feel worse.
 
I joined a programme at the local day hospice which helped me meet other cancer patients, but I was the youngest by far. And my treatment was different. So I muddled through. But I made mistakes, decisions I regret. Decisions that I may have made differently had I known more about the reality of cancer rather than what’s in the literature.
 
I remember thinking several years ago about how having a blog to read would have helped, digesting someone else’s journey, being inspired by their story, learning, laughing, crying, sharing.
 
I also remember thinking that if I ever got cancer again, I would do one, write my own blog.
Obviously this was not an invite to the universe to make my wish come true!!
 
But it did. And so I did.
 
It’s a weird feeling writing about your own life. How much do you share? Do you reveal your identity? Obviously I decided yes to the last question – I thought it was important to be a real girl.
And so I share what I would have wanted to know. I share what I think is important even if others don’t. Yet. And I share my story. Some of it may resonate, some won’t. It doesn’t matter.
 
This is my journey and I know this blog has helped those on a cancer journey and others who are supporting. Hopefully it will continue to do so.

You might also be interested in:

Milly Molly Mandy

I can remember the day I met Milly.  She started as a temp for law firm and was covering one of our department’s secretary’s maternity

Read More »
Olivia newton john

Hopelessly Devoted

Olivia Newton-John was one of my first heroes. I thought she was awesome, beautiful and talented.  I wanted to be her. Sandra Dee I was

Read More »
Rose Gold Warrior Blog

Warrior, Smash!!

This week brought my third annual visit to the breast clinic. There’s something about the name than conjures up ideas of nurturing and care. Perhaps

Read More »
Fiona

Fiona

Two-time Breast Cancer Survivor and Blogger, Mum to a boy with Autism and ADHD, Lawyer, Holistic Practitioner, and lover of anything sparkly and rose gold!
Fiona

Fiona

Two-time Breast Cancer Survivor and Blogger, Mum to a boy with Autism and ADHD, Lawyer, Holistic Practitioner, and lover of anything sparkly and rose gold!